The first step is the one that means the most.

Sharing my story one step at a time. Helping you step into your own.

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I'm Sharing My Life as:

“My goal is to share my story, in hopes that you can relate and grow from the lessons I've learned."

Alexa Orban

My Story

One of the biggest things I want to share with you is how your personal story can benefit your growth. How you step into the world is important. We all need a mentor when we start our journey in the professional world as an entrepreneur, businesswoman, or when we're going through a life change. I'm here to be the support system that I wish I had.

I'm passionate about helping you or your business share your story.

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The snowball effect of being yourself ✨ 5 years ago, I made one of my first instagram reels talking about Cerebral Palsy. One post lead to another, and I as started creating I realized something- I wasn’t alone. 💚 For most of my life, I was the only person I knew who moved through the world like I did. I always felt so alone. Growing up, I didn’t understand I had a disability. A symptom of lack of education and support from my doctors and care team. Because my case was “mild” OT, PT and extra care was often overlooked. Fast forward to meeting Katy at @cerebralpalsystrong She may not know this (but she will now), that she totally changed my perspective on who I am as a person with a disability. I felt empowered to learn more about my CP, talk about in my life, and pursue opportunities in the disability space professionally. This fall, CP Strong hosted a social in New. York city that had over 40 attendees with Cerebral Palsy come together in one room. From locals, to people who flew in from across the country, we were able to gather in one space, connect, and share stories. For me, it was another life changing moment. I still don’t have the words to fully explain what it was like to be together. 🤍 Three that do come to mind: warmth, interconnection, laughter. Without that ONE social media post- I would not be where I am today. I think about that so often. What if I never started to share this piece of my life? But thankfully, I did. And I’ll continue to 💚 I’m not saying that you have to share pieces of your life publicly in order to make a difference, but I truly believe in the power of telling our stories, even if it’s just with an intimate group of friends. @kfetts - thank you for your dedication, energy, and passion that you bring to every project. I’m so thankful to know you and can’t wait to support and attend events for @cerebralpalsystrong for years to come 🌎 #cerebralpalsystrong #cerebralpalsyawareness Image descriptions: an image montage of the CP Social in NYC. The first photo is of Alexa and Katy, standing in front of a backdrop that says CP social 2024 addition. Followed by group shots, intimate conversations, and meals.

With wedding planning in full swing, I’ve been thinking about what this day means to me. It’s not just about the event (contrary to what social media tells us); it’s about sharing this moment with the people who have shaped our lives and our love—the ones who know us best and have been there through it all. It’s not about putting on a show but about creating a day that feels like us, filled with love, connection, and the little moments that have shaped us as a couple. 🤍 I know other brides might feel this too, so here’s what I’ve learned so far: - Choose guests who feel like home. Invite those you’d welcome for an intimate dinner—people who understand and appreciate you both and who you can’t imagine sharing this moment without. - Trust your own vision. It’s so easy to get caught up in others’ opinions, but stay connected to what feels right for you and your partner. Create the magic the way you see it. - Make it meaningful. Don’t be afraid to do things a little ‘out of the ordinary’ if they reflect who you are. This is your story, and the little personal touches are what make it unforgettable. Through this journey, I’m learning that while this day is special, it’s only a part of a much bigger story—the magic of all the small moments that brought us here. And though this day will open a new chapter, it’s just one of many beautiful ones to come. 💫 If you feel the way I do, keep following that path and create a day that’s truly for you and your partner. 🤍 Video description: the real opened on Alexa looking through a rack of wedding dresses, it cuts to a few clips of Alexa and her fiancé Tom in Florence. She is wearing a white dress and he is wearing a tan suit. text on screen reads-Planning a wedding? Here’s what I’m learning along the way…

Chronic Pain is like a Coin Purse. 👛 Chronic pain is something you carry every day, even if you don’t need it Sometimes, the purse is empty, but the pain is still there Following me Everywhere I go Chronic pain is like a coin purse When it’s full of change it’s heavy It’s bursting at the seams wanting to come out, but has nowhere to go Weighing down My steps Who needs a coin purse, especially these days? I have no choice but to carry mine Hoping each day the load is light Some days, a physical transaction costs me 99 cents in change The exchange of an activity or night out with friends Even on quiet days, it demands its toll A tax on my body owed The coin purse fills up And I carry its weight once more—unseen - - - I often get asked what my day-to-day pain is like. For people who don’t experience chronic pain, I tried my best to explain the feeling. To the many moms who ask me what my pain was like as a child- that I don’t remember as much. I started to feel this way about a decade ago, and don’t forsee it improving 💚

How do I keep moving, and moving safely? 💡 One of the things I keep adding to is my AT (assistive tech) & mobility toolbox. I was talking to a friend the other day who also has cerebral palsy and he wasn’t aware of the many tools that I use daily to stay out of pain and keep moving- so I’ll share some with you: - My AFO - Ice Packs - Toe separators - Good sneakers (like my @cadenseadaptive) - Foam rollers - Compression socks #adaptive #AFO #cerebralpalsyawareness

Home 🏡 And little pieces of life lately ✨🎃 This past year we’ve hit so many major life milestones, it’s hard to sometimes take a breath and be present in the little moments that mean so much. Excited for this new chapter, together 🤍 @tomkaras_

If you know me- I always want to keep going 👟 One of my biggest fears with my disability is running out of steps to take. Not having the stamina to keep going on adventures, trips, and hikes 🌎 How do I keep moving, and moving safely? 💡 One of the things I keep adding to is my AT (assistive tech) & mobility toolbox. I was talking to a friend the other day who also has cerebral palsy and he wasn’t aware of the many tools that I use daily to stay out of pain and keep moving- so I’ll share some with you: - My AFO - Ice Packs - Toe separators - Good sneakers (like my @cadenseadaptive) - Foam rollers - Compression socks They all might seem simple, but they’re so effective when I use them regularly. From the outside looking in, it may not seem like I need all of these things to keep moving- and it’s a big piece to why I want to share them with you. #adaptive #AFO #cerebralpalsyawareness

In the moment, you don’t realize how far you’ve come, until you have some reflection to look back 🌲🐋🌊 I’m thankful for all of the, hard work, growth, passion, and moments where we come together on this team. Looking forward to everything that’s to come 🐙

A little Disney recap ✨🏰 and extra magic moment 🤍 I asked @torly2 to be my maid of honor and I’m so thankful she said yes! Almost a decade ago Tori and I became friends, roommates, and what now feels like sisters. She’s someone I text every day- even for simple silly things, we always bring each other through the best and worst moments of our lives, and I truly don’t know what I would do without her in my life. Sometimes, the best friendships come into your life out of nowhere. I’m so thankful the universe brought us together. Thank you for an amazing long weekend, wedding ears, and for getting the Disney trip out of the group chat! 🤍

One year of being engaged to you 🤍 While I love to look back on the pictures, my favorite part is actually reliving the day. We woke up early, the streets of Florence were so quiet. People walking to work and grabbing a coffee on the way. Standing in front of the Duomo before the crowds arrived. The moment happening 💍 Our photoshoot seemed like it wasn’t real. @florencephotographer_ made every shot seem so special 📸 But one of the things I loved the most was the simplicity of the day. We didn’t plan a fancy dinner or anything extravagant. We went out to a cafe and enjoyed an espresso together. Explored the city, grabbed an Aperol spritz to go and watched the sunset at piazza Michelangelo, then went out to our favorite pizza spot. 🍕 All of our little moments add up to the reasons I love you so much- and this day was the perfect example of how we love each other. I can’t wait to marry you @tomkaras_ 💍🤍

Disabled friends- have you ever felt this way? I know I’m not the only one that puts a ton of pressure on myself to strive for perfectionism in ways that my body lacks physically. If you’re feeling like you always have to keep up, you’re always falling behind, or if everything needs to be perfect, you’re not alone. For a long time, I felt like I was the only one- and that’s why I wanted to share this with you today 🤍 #cerebralpalsy #disabilitystories #physicaldisability

I’ve walked 100 miles in these shoes 👟 … give or take based on our daily walks! For such a long time I didn’t want to use mobility aids. I felt like I didn’t ‘need’ them, and I didn’t want to stick out for wearing an AFO or adpative shoe. What I was holding myself back from was more comfort and less recovery. Now looking back at this- I WISH I had started to wear better footwear for myself. The idea that style is better over comfort is real. Thankful with my @cadenseadaptive- I can have both! If you’ve been thinking of adding mobility aids into your life- I say go for it. A piece of advice that I received from an older person living with CP is that he wished he took care of his body when he was younger. My personal motto is to make the changes now so I can stay mobile tomorrow. Having mobility aids or adding them to your accessiblity suite is OKAY! If it changes the quality of your life for the better, it’s worth it every time. #adaptivefootwear #newsneakers #cerebralpalsyawareness

Theme of the weekend: Love & Oysters 🤍🦪 It’s amazing to see our childhood friends find their people, and we’re so honored to be apart of their special days. @patbaker12 & @lilyalfano - you both just started a brand new and exciting new chapter of life. We love you so much and can’t wait to keep making memories with you ✨

Snaps of Cape Cod 🏖️☀️ Out of all the places I’ve been, the cape will always hold a special place in my heart. It’s like going on vacation, but also going home. Thankful for all the memories and beach days, and grateful to my parents for letting us crash at their beach house 🏠

Growing up with cerebral palsy, I didn’t just think I was different, I knew I was different. My body moved differently than all of the kids around me and I struggled to keep up the way that they did. Really early in life, I learned to adapt. I have to adapt to keep up, adapt to a world around me that isn’t always accessible, and adapt to my body that changes day-to-day. Some people are afraid to stand out, pivot, change up the way that the ‘norm’ is done, but to me that’s just life. I know I’m not alone in this feeling, especially when it comes to the CP community. 💚 Because of this community, I’ve also felt less alone in my experiences living with a disability. It’s amazing to feel seen, heard, and connect with people. @cerebralpalsygrowsup is an initiative I’m excited to be apart of, and share with all of you. Give them a follow for stories like mine, resources, and more to exciting projects to come 👏🏻 #cerebralpalsygrowsup #CP #disabilitypridemonth #cerebralpalsyawareness Video Description: Alexa is walking on a beach boardwalk wearing an AFO. A series of clips follow, ballet, snowboarding, and tennis. The video ends with Alexa as a toddler walking in a hot pink cast. It then cuts back to the first scene of her on the beach.

There’s waves and tides in every relationship 🌊 I was talking to a friend the other day who opened up to me about her relationship- she was nervous to open up to me because “my relationship seems so perfect.” I know I share a lot of our highlight reel of life on social media, but I also wanted to share some advice I have for anyone who is in a long term relationship (whether it be a significant other, friend or family member) 1. We are all human. Living on earth for the first time, learning as we go. No one is perfect! The people you are going through life with aren’t perfect either. Find people who are willing to learn through mistakes and forgive you for yours as you learn on your own journey. 2. Relationships have tides. Some high, some low. When people look for a long term relationship, they often get frustrated when things aren’t going as well as they were. Life happens. And sometimes it’s hard. When you find someone who is willing to work through each tide of life- they’re meant to be on the journey with you. 3. Love comes from YOU first. No one can give you all the love you or fully fill your cup. It all starts with the inner work and healing that you work on every day. The love you find with other people should keep your cup full, not drain it. 🌊 Know in your heart who you want to keep in your life, life is so much better with the right people by your side. Resharing as a reel to reach more people who may need this today ✨🌊 Video description: the waves of Portugal’s Guincho beach roll onto the cliffs. A seagull flys by the camera as waves crash.

There’s waves and tides in every relationship 🌊 I was talking to a friend the other day who opened up to me about her relationship- she was nervous to open up to me because “my relationship seems so perfect.” I know I share a lot of our highlight reel of life on social media, but I also wanted to share some advice I have for anyone who is in a long term relationship (whether it be a significant other, friend or family member) 1. We are all human. Living on earth for the first time, learning as we go. No one is perfect! The people you are going through life with aren’t perfect either. Find people who are willing to learn through mistakes and forgive you for yours as you learn on your own journey. 2. Relationships have tides. Some high, some low. When people look for a long term relationship, they often get frustrated when things aren’t going as well as they were. Life happens. And sometimes it’s hard. When you find someone who is willing to work through each tide of life- they’re meant to be on the journey with you. 3. Love comes from YOU first. No one can give you all the love you or fully fill your cup. It all starts with the inner work and healing that you work on every day. The love you find with other people should keep your cup full, not drain it. 🌊 Know in your heart who you want to keep in your life, life is so much better with the right people by your side. To my person 🤍 I’m thankful for all the work we put into ourselves and to each other. You help me become a better person everyday, and there’s no one else in this world I would want to build a life with 🌎

🌎 On Global Accessibility Awareness Day, I’m honored to share a powerful initiative I had the privilege to be a part of— a movement to foster greater visibility and inclusivity for anyone who loves to share GIFs online. This project, a collaboration among the @worldinstituteondisability (WID), @helloscribely, @giphy, Daniella Decker, and disability advocates, aims to transform how disabilities are represented online. 🎬 At a recent GIPHY photoshoot, I represented mild cerebral palsy, contributing to a series that includes alt text, making each GIF accessible to everyone. We’ve also incorporated personal descriptions from all involved to ensure our identities are represented authentically. 📸 👀 Check out our GIFs on WID’s official GIPHY channel: https://lnkd.in/e62UV74e #DisabilityInclusion #Accessibility #InclusiveTechnology #SocialMediaForAll #GAAD Content description: Alexa stands at the center of a professional GIPHY photoshoot, smiling at the camera. Behind her, a camera operator focuses on capturing the moment, while the director of photography holding a laptop, observes the shoot. Video: A GIF of Alexa giving a chefs kiss saying amazing, text on the screen reads, “Amazing!”

What if you stepped into somebody else’s shoes for the day? 👟 Living life with mild cerebral palsy has really transformed the way that I look at disability, and that’s why I’m sharing my story with you. Because even though it may not look like I have a disability and that I need accommodations- acessibility and mobility aids help me so much throughout my day. That’s why products like the @cadenseadaptive shoe have truly changed the game for me and what it looks like to be mobile and active every day. 👟When you step into somebody else’s shoes and see life through their perspective, you realize that disability isn’t a one size fits all model and so many disabilities have a spectrum. I’m here to change that narrative. One step at a time. #ad #adaptiveathlete #adaptive #cerebralpalsy #dropfoot Video Description: a montage of videos of Alexa wearing a white athletic top and black leggings with white cadence adaptive sneakers, walking on a beach. The voiceover on the video is the same as the caption above.

Having a seat at the table 🪩✨ It was such an honor to be around a table of women who are making changes in the world for people with disabilities. We are stronger together through our diverse perspectives, stories, and avenues in which we are making change. @normakamali, thank you for making space and hosting us at your studio. 🤍 Image descriptions: An image slider at Norma Kamalis studio in NYC. Image 1: Alexa stands in a black top, and rose gold shiny skirt next to Norma Kamali, who is in a printed pattern suit. There is a scrolling image of Norma’s designs in the back Image 2: Alexa, Ella, and Crosby smile for a picture together. The background is a modern studio. Image 3: A large table with place settings, decorated with palms. Image 4: a group of women stand with Norma Kamali in her studio

Disability has a spectrum. Some disabilities are invisible. Some are dynamic. Disability is not a one size fits all model. I’m here to tell you my journey, through my experience. As many creators share their personal stories, I challenge you to take a moment to learn before you comment or think before you speak. The more we share our stories, the broader the picture is on what life is like living with a disability 💚 Full comment: “I am so glad you are taking an accommodation that is made for you! i think sometimes as women who want to “do it all” or have been taught to push through it’s hard to ask for help but you did and that’s amazing! making a better day for you and maybe even a day after better for you too!” Thanks for understanding and sharing an amazing perspective. I couldn’t agree more! 🤍 Video description: Alexa is wearing a pink dress, holding her phone taking a video. She is replying to the comment posted above. #disabilityawareness #cerebralpalsyawareness #accomodation

Can I tell you something about shoes? 👠 For people with a motor disability, like myself with CP, it’s not as easy for us to find shoes that work WITH our bodies, instead of against them. I go through 3-4 pairs of sneakers a year because of my drop foot, my brace eating through my shoes, or from constant tripping. (CP friends I know you know the struggle!) When I first found out about @cadenseadaptive, I put my order in for sneakers on preorder that same day 👟 For a long time, I didn’t want a mobility aid like an AFO or custom orthotic sneaker. Truly, these sneakers were a game changer. What makes them so special? The technology in Cadense shoes removes the friction between the shoe and the ground according to the user’s movement, helping to prevent the foot from catching on the ground when walking. In simple terms- instead of tripping, the shoe helps you glide through your stride 😎 When the team reached out to collaborate with me, I couldn’t of asked for a better fit (shoe pun intended) 👟😂 My sneakers now have over 20 miles put on them, and I can’t wait for many more. Thanks for all you’re doing for people like me @cadenseadaptive. This first pair is just the start! #ad #adaptivesports #adaptiveathlete #cerebralpalsy #dropfoot

Do you ever wonder what the future will look like with your disability? 👇🏻 Sometimes, I think my steps are numbered. Like a ticking time bomb one day I’ll run out of steps to take. My chronic pain will be too unbearable for long walks and adventures. I can lay awake at night and fear not being able to run around with my future children. And then, sometimes, my mind catches itself going into this place and I try to center my thoughts ✨ ⏳ At this very moment in time, today, I can still do 90% of the things I want to do. I’m doing everything I possibly can to keep my body healthy. I’m taking care of myself. I’m moving. Today, I’m doing okay 🤍 I’m sharing how I feel, because I know I’m not alone. I know you may have felt these exact fears at one point on your journey with your disability. There are so many things to navigate and overcome. Intrusive thoughts, feelings, and fears are REAL. You can feel them all at once. Sometimes, I’m so proud of myself for things I accomplish- and some days, I wonder if it will be the last time I do something like that. Try to choose today, instead of looking into what tomorrow may bring, I know I do 💕 But, if you can’t- that’s okay too. #disabilitythoughts #disabilityawareness #cerebralpalsy Video description: Alexa is walking down a street in Florence wearing a black flowy dress, she turns around and faces the camera. Text on screen reads: What’s my biggest fear with my disability? Running out of steps to take. In the meantime, I enjoy every one. Read more in the caption. The sound says: I’ve said it before and I’ll say it again, life moves pretty fast. If you don’t stop and look around every once in a while- you could miss it.

In the moments that seem black and white- you give me color 🤍🖤

✨ Here’s a secret I wish I knew earlier: “Nobody is thinking about you the way you are thinking about you. They’re all thinking about themselves.” - @briannawiest 101 Essays That Will Change The Way You Think. What would life start to look like if you: 🎞️ Made that reel ✈️ Booked that flight 💻 Applied for that job And started living life for YOU? 🤍 I’ve spent too much of my 20s trying to fit in- my life truly started to change when I decided I wanted something different for myself. Make a small change today- to open up a different tomorrow. #101essaysthatwillchangethewayyouthink #briannawiest Video Description: Alexa is walking through the Rua Augusta Arch in downtown Lisbon. All around her people are walking by, taking selfies, and chatting. A blue sky with puffy clouds peeks through the arch. Alexa turns around and smiles.

Cerebral Palsy Awareness Month Giveaway! 💚 As CP Awareness Month comes to a close, @springrose.co, @cerebralpalsystrong and @lexi_orban have come together for a giveaway! 🎉 Enter to win Springrose’s amazing adaptive bra designed for women with limited mobility who care about comfort and functionality. Here’s how: 1️⃣ Follow @lexi_orban, @springrose.co,and @cerebralpalsystrong 2️⃣ Sign up for Springrose’s newsletter (link in bio) 3️⃣ Tag your bestie in the comments & double your chance to win 🫶Here’s why you’ll love it: -Wireless, front-close design for easy dressing -Soft, supportive fabric for all-day comfort -Versatile design allows for multiple wearing options #adaptiveclothing #cerebralpalsyawareness #cpawarenessmonth #cerebralpalsystrong Video Description: A stop motion video of a Springrose box opening with a black adaptive bra coming out of the package. Text on the screen reads: Cerebral Palsy Awareness Month Giveaway! Enter to win Springrose’s adaptive bra designed for women with limited mobility who care about comfort and functionality.

If there’s one thing I want you to learn today: disability is a spectrum 🤍 People often tell me “I don’t look disabled,” and while I know that sentiment is usually because they are trying to come from a good place- the reality is that I am. What does disability “look” like exactly? Well for starters, it can look like me, someone who has mild cerebral palsy. 💚 “It’s not about overcoming cerebral palsy and moving on with our lives. The point is, there is no getting over a lifelong disability. We must learn to live and grow up with this body despite the challenges it presents in our daily lives.” - @cerebralpalsystrong #cerebralpalsystrong #mildcerebralpalsy #cerebralpalsyawareness

If you know me, you know I love all things Disney 🐭✨ Over the past decade I’ve been to Disney World and Disney land over a dozen times… but I’ve never used the Disability Access Service (DAS) at the parks. Why? I honestly ask myself that same question. If I’m being candid, I felt as though I didn’t need the extra accommodation. I would take breaks, try to plan days around steps, and fight through fatigue and chronic pain with extra Advil. Instead of trying to push myself to the point of exhaustion, I’ve started to lean into the accommodations around me for my cerebral palsy. My AFO is one of them, the DAS pass is another. As I get older, I notice that my body is changing. Bouncing back from a long day isn’t as easy as it used to be. Fatigue can sometimes be invisible and it may not always look like I “need” an accommodation, even when I do. I’m here to share my story navigating what my life looks like with mild CP. 🤍 Thank you @disneyparks for making my day more enjoyable and inclusive. #cerebralpalsy #disneydas #disneylandpark #cerebralpalsyawareness Video Description: Alexa is walking up to the Castle at Disneyland wearing an AFO, skirt, and jean jacket. The text on the video reads: My first Disney day, using the Disability Accommodation Service (DAS). Navigating life with mild cerebral palsy.

When your bestie-in-law’s meet for the first time 🥹🤍 Our family and friends had THE BEST time supporting @rmhcctma last night at Dancing Under the Stars. It was amazing to be all together to support @tomkaras_ who won Most Likely to Go Viral 🕺🏻🏅 last night during the dance competition. The house that love built had over 400 supporters cheering on the local celebrity dancers 🪩

A little personal #FridayReflecfion I had after reading a book my grandmothers’ left to me 📖 My two grandmothers were remarkable women who shaped my world – Baba Sarah and Baba Olga. Their lives were a testament to resilience. They weathered so many storms and navigated a childhood through the Great Depression. But beyond the challenges they faced, they lived a life full of so much love and enjoyed the simple pleasures of every day. As a child, I saw them as two people who revolved around my little world 🌎 As an adult, I’ve come to realize that they, too, were navigating their own journeys of growth and self-discovery. They were learning, evolving, and carving out their paths in a sometimes unforgiving world. They taught me the importance of resilience in the face of adversity, the power of compassion, and the beauty of finding joy in the simplest of moments. Today, as I navigate life’s twists and turns, I carry with me the lessons they left me – lessons of courage, kindness, and the importance of embracing things with an open heart. I owe so much of who I am – my confidence, my adventurous spirit, my culinary skills, and my compassion – to these two remarkable women. They may no longer be with us in person, but their legacy lives on in every aspect of who I am today. ✨ Something to reflect on as you wrap up your week: look back on your journey of growth. You may be surprised to see who’s positively impacted your life. We get to carry the love, wisdom, and strength of those who have touched our lives, and their memories can continue to inspire us to be the best versions of ourselves.

I used to think one day I’d “make it.” ✨ What I didn’t realize then, is that I’m making it every day. I’m creating my life, my dreams, my career, my passions. It’s not about the feeling of when you get there, it’s about the feeling of building as you go. What if we stopped looking at what everyone else is doing, and started to come back to our own personal truth? The passions that light us up every day, our favorite meals, the people who mean the most to us, and places we love to be. What if you started on your own journey today, authentically as you are? ⛵️ #thejourneycontinues #youaredoinggreat #motivationalthursday Video Description: the caption above is placed on a video of a sailboat, casting its sail.

If there’s one thing I’d want you to know... As someone who adores ballet and navigates life with cerebral palsy, I’m here to share a lesson I live every day: You don’t have to be the best in the room to pursue your passions. Whether it’s ballet, painting, cooking, or any other hobby, dare to be a beginner. Step outside your comfort zone, embrace the journey of learning, and watch what unfolds on the other side of saying YES to something you love! 🌟 So here’s to trying new things, discovering untapped talents, and finding the joy of pursuing our passions – no matter where we are on the journey. Remember, the magic lies in the courage to begin. ✨ #EmbraceYourPassion #DareToBegin #FindYourJoy #CerebralPalsyAwareness #DanceYouOuttaMyHead Video Description: Alexa dances across the floor in ballet. The music playing in the video is Cat Janice’s “Dance You Out of My Head. The text on the screen reads: It there’s one thing la like you to know... As a person who loves ballet and has a disability You don’t have to be the best in the room to persue your passions. Try new hobbies, be a beginner, and get out of your comfort zone. The happiness you’ll find is on the other side of saying yes to something you love!

In a world quick to judge abilities based on appearances, my journey with mild cerebral palsy has been taught me personally on assumptions people make. Over a decade, I taught myself how to snowboard. My story starts at the age of five with my parents trying to teach me how to ski. Because of my right leg, I could not successfully pull off the pizza method 🍕 At 11, I traded skis for a snowboard. I was frustrated at first- as per usual I couldn’t learn how to snowboard like everyone else. Through adaptation, and embracing my unique pace- I started to get my groove and can safely make it down the mountain. 🏂 As I share my story, I want to reiterate that assumptions about abilities based on appearances can extend beyond my own experience. Disabilities are a spectrum. When you’re making an assumption about someone living with a disability- I challenge you to think on your preconceived notions. Every body (pun intended) is different- sharing how we are can really make an impact in this world 🤍 So here's to embracing our journeys, challenging assumptions, and rewriting the narrative. ✨ #DisabilityInclusion #MildCP #CerebralPalsy #AdaptiveJourney Video description: I am snowboarding down a snow covered mountain, halfway through the video I do a half turn. Text on the screen: Reframing the way we look at disability- as someone living with mild CP.

I’d travel 2,400 miles away for you any day ✈️ #longdistancebesties 🤍✨ And you’d do that for me… but mostly for my cat 🐈‍⬛

A holiday reminder 🌲 — Sometimes the best gifts are time spent with the people who mean the most to you. — The holidays don’t always have to seem magical. Some seasons aren’t. — There’s always a way to find a little sparkle. ✨ — Keeping your peace is worth it. — It’s okay to make new traditions when the old ones no longer serve you 🎄 — You can grieve the past while enjoying the present 🤍 _____________________________ I want you to know that through this season, you’re not alone. Each holiday season can look so different from the last- memories made, people at your table, traditions started or stopped. ✨ I always try to find the magic in each season, and I hope you can too. #holidaytraditions #newholidaytradition #holidayseason2023

A reality I hear all too often: Yes I have a disability but I haven’t been to a specialist in YEARS. 🫣 I feel that on a personal level. When I was 22, the Children’s Hospital that had treated my cerebral palsy for over 20 years, said that I was no longer eligible to see my specialist. I knew the day was coming. What shocked me the most was the lack of support I had when I asked: 🤷🏼‍♀️ So what’s next? 📞The answer: “Here are a few local podiatrists you can call.” Not one of them specialized in cerebral palsy. Over the next few years, I struggled to find the right care for me. In 2020 after not seeing a specialist for over 5 years, I researched and found an adult CP specialist… all the way in NYC. All too often, this is a reality for people living with mild cerebral palsy- and this is also a reality for many people living with disabilities. I know the system needs to change and more support needs to be given from our healthcare system. But in the meantime, please take care of yourself. Research and advocate to get the care that you need! Having support as an adult has absolutely changed my view on my disability. I’m not an expert, but I am here to share my experience so other people don’t feel so alone while navigating the world as an adult with a disability. If you have a similar story- drop your advice or experience in the comments 👇🏻👇🏻

A few tips on sharing your story ✨ 🤍 Start at Your Comfort Zone: Opening up about your story is a journey. Begin by sharing what feels comfortable to you. You’re in control of how much or little you want to talk about. 📈 Authentic Growth: Building a community around your story happens authentically. Be genuine, and let connections form naturally. ✨ Have Fun with Your Narrative: Sharing your story shouldn’t feel like a burden. Have fun with it! Express yourself in a way that brings joy to you 🩵 A lot of people ask me how I started to share my journey with Cerebral Palsy. It all started with one post three years ago. I didn’t know where it would take me and I’m still learning along the way. Sharing my story | learn to share your story | how to share your story authentically

I’m almost me again ✨🤍 Though I wouldn’t change the plot twists in my life these past few years, I can’t always say every day was easy. I’m seeing the real me come back to life, one smile at a time 🥹 Here’s to pushing through the hard times to find a little bit of joy at the end of the day. 🤍

Ever caught yourself in the act of self-sabotage and wondered why you do it? It’s like there’s an invisible force pushing you away from your goals, stopping you from taking on your next adventure ✨ Your mind and body are wired to keep you safe. They steer you away from your hidden fears, making it seem like you’re lacking discipline or motivation. But maybe there’s a different approach to starting something new. Here’s a few ways you can push past self sabotage: 1️⃣ Uncover Your Fears: Start by pinpointing what’s scaring you about the goals you’re pursuing. These fears might be in your subconscious, like fear of failure, success, or judgment. Take some time to journal about what you want in life. One of the best pieces of advice I’ve received is to connect a goal to an emotion. How will getting to that goal make you feel?! ✨ 2️⃣ Connect to Your Mind and Body: Remember, fears affect both your thoughts and your reactions. To break the cycle, you’ll need to tackle both aspects. What have you been putting off? How does your body feel as you step outside your comfort zone? In order to grow past these reactions- start small. Do one thing to change your day-to-day! 👏🏻 3️⃣ Start to Heal Your Fears: Your path to self-improvement begins with healing these fears on both a mental and physical level. Once you do, you’ll find it easier to take consistent action. The little wins you start to give yourself add up to a world of a difference 🌎 I’ve worked on my fears by talking through them with friends, hiring a life coach, reading books, and listening to podcasts. Your fears won’t go away today, but your future self will thank you for giving them a better tomorrow. Do something outside of your comfort zone, and watch your life start to become the one you’ve always wanted to live 🤍

Little moments in Italy 🍝🍷 We ate a little, laughed a lot, and loved every minute. Some of our favorite spots: 🍝 @enoteca4leonifirenze & @trattoriazaza 🍷 @dalle.nostremani & La Braccesca 🏘️ @borgotrerose ⛪️ Santa Croce Firenze & St Peter’s Basilica 🎨 The Vatican Museums

My disability has taught me to fail forward and adapt time and time again. Here’s 3️⃣ things I want you to learn through failure: 💡For many people, failing is scary. But what you may not realize is all of the failures you WILL have in your life, add up to your growth. If you’ve never failed, you’ve never tried anything new. 👉🏼 Facing a new opportunity head on can be scary. The imposter syndrome can set in. You’ll ask yourself - “what if I’m not enough?” “What if I can’t do this!” The answer: maybe you can’t do it yet, but you’ll be able to with enough practice and patience with yourself! The best way to learn is by stepping outside of your comfort zone. ✨Failure doesn’t define your entire life. We’re all here to learn and grow in this lifetime. Stop being so hard on yourself and allow yourself to embrace failure. My brain 🧠 has trained itself to accept failure. Does that mean I’m never hard on myself? No! But I do accept the fact that nothing good comes from giving up. I have to keep working towards the things I want in life. Even when it takes me 10x longer than someone else. You are meant to learn. You are meant to grow. You are meant to be you 🤍

Reliving some moments from Portugal 🇵🇹✨

What was I made for? ✨ Sharing my life on social media has been such a journey. It’s helped me learn more about myself in ways I could’ve never imaged, especially with my disability. When this all started I wanted to be an ‘influencer’ that shared her favorite products, restaurants, and travel destinations. Little did I know that one reel about my Cerebral Palsy would change that path for the better 💚 Almost 10 years later, I’m finally feeling confident about the pieces of my life I want to share with you all. It’s been an adventure getting to this point and it all started because I kept saying ‘yes’ to trying new things. Every single day we can take steps that change our lives. 👟Sometimes, we don’t always know what the destination will be- but that’s the greatest adventure of it all 🌎

If I could capture a moment in time from our trip abroad, it would have to be this one 💍🤍 The morning I woke up to a last minute photo shoot, I had a feeling something was going to happen. What I didn’t know, was the first picture of the morning Tom was going to ask me to marry him. 📸 We walked over to the Duomo just as the sun was peeking out from behind the clouds of a rainy morning. Our amazing photographer Stela (@florencephotographer_) had just set us up for the shoot. All of a sudden, Tom gets down on one knee. I of course said yes 💍 For almost 3 years we’ve been planning this trip abroad. Honestly every moment of it felt like a dream. From the minute we landed in Portugal to our last meal in Rome. 🍝 If anyone told us 4 years ago if this is the place our life would be- I wouldn’t be able to believe it. So much has changed, in ways we honestly never could’ve imagined. I’m so thankful for every single moment that got us to that second in time. 🤍 I love you @tomkaras_

Found a fiancé in Firenze 💍 Here’s to a lifetime together 🥂

5 Things I Want You To Know About Your Self Worth ✨ 1. You are allowed to put up boundaries on certain situations even if people around you aren’t. 2. The things you own, title at your job, and money you have in the bank does not define you. 3. You can redefine who you want to be, today. Right now. 4. Don’t let a past version of yourself dictate who you are in the future. 5. Be yourself. The right people will value who you are! #selfcareisselflove

Cerebral Palsy looks different for every single person, but one thing many of us have in common is our strength. 💪🏼 The strength to push through, to keep going even when we want to give up, and to preform against all odds. At 28 I’ve started using my first daytime AFO (Ankle-foot orthoses) to help my balance and to gain my strength. Growing up I used to fight my parents to not have to wear one to bed. Now, I’m not afraid of the tools I need to use for my best quality of movement. 🚴🏼‍♀️🏋️‍♀️ My body can do some amazing things when I put my mind to it. I’m proud of how far I’ve come and where I’m going. Feeling #cpstrong today 💪🏼💚 #cerebralpalsylove #cerebralpalsy #cerebralpalsyawareness

My cerebral palsy has taught me to be a beginner 👏🏻 So many of us are afraid to be a beginner because we may not be good at something right away. Are you one of those people? 🤔 For me, any psychical activity means I need to adapt and figure out the best way for my body to accomplish the task. I know not only will I be a beginner, but it will may also take me a longer time than the average person. I was fortunate that I was able to learn this about myself when at a young age. Giving myself the resilience to push through so many things. Now it’s natural for me to have this mindset. It’s taught me tenacity, strength, and that sucking at something at first doesn’t mean I can’t love it. And even if I never gain the skills to be the “best,” if I love it, I’ll still do it. I want you to tell yourself that being a beginner is temporary. That if you want something enough you’ll push yourself to get through the first stages. Pushing yourself through something new for the first time will make it easier next time you’re looking to do something new. Stop wondering what other people will think of you, and start living your LIFE! Try something new this week, who knows how it might change your life?! 👏🏻 #cerebralpalsystrong #disabilitystrong #mildcerebralpalsy #beabeginner

Girls night to see Lizzo ✨🕺🏻🪩 I have to shoutout this amazing woman who is so so special to me. 🤍 Rachel and I were joking that even though we’ve been friends for over 20 years, we never get pictures together. I feel like that’s always the case with your oldest friends. 📸 So we did it, here’s the evidence we had a night out 🪩 Through so many ups and downs in life we have always tried to be each others rocks 🪨, with the major love help and support of the amazing @teeeg626 🤍 No matter are we were in life or the country, we always know we’re there to pick each other up when it’s needed the most. I’m so blessed to have such special women in my life. I love you all so much and look up to you on the daily 💕 I think we can both say this night was much overdue. 🥂 Cheers to canned wine and more fun times.

Cerebral Palsy has many different affects on each person who is diagnosed. My whole life I was told I had mild cerebral palsy, which impacts the movement of my right side. When I show up to share my story, I always want to give the most authentic version of that, and who I am as a person. 💚 The other day I was trying to share my story and broke down into tears from being overwhelmed from some of the recent news I’ve heard from my doctors on a care path forward for my mobility. It really got me thinking on the best way to share that journey with all of you. Today, I’m deciding to show you that even though my body is amazing and I’m so proud of all that I’m able to accomplish, that there are bad days. There are days of rest, recuperation, and days of adventure and pushing myself psychically. And that’s okay. 👏🏻 #cerebralpalsystrong #cerebralpalsylife #cpstrong

What no one tells you about being an entrepreneur… Life can start to go by in a flash ☄️ 1️⃣ You now run your days. Which means more free time. It’s up to you how you fill your workday, hobbies, spare time, etc. 2️⃣ It’s easy to look back on a day and think you totally wasted it. And maybe you did. But that doesn’t mean you have to be too hard on yourself. Take a fresh start the next day. 3️⃣ You can have FUN. We only have this one life to live. Build your dream and your dream life at the same time. Everyone’s path is different. We can make the most of our life working for ourselves or chasing the dreams we have 🤍 I’m a work in progress building my dream. Taking in the small moments and savoring each adventure. I’ve pushed myself to get out of my comfort zone, be in the drivers seat of my own life, and fail forward. I may not know everything, and that’s okay. One thing I do know is “Life moves pretty fast. You don’t stop and look around once in a while, you could miss it.” - Ferris Bueller. #entrepeneurmindset #buildingmydream #lifegoesbyfast

Did you know that over 30,000 people ride in the TD 5 Boro Bike tour?! 🚴🏼‍♀️🚴🏽🚴🏻‍♂️ Standing in the starting lineup with thousands of people all around us in the charity wave was surreal. Katy (@cerebralpalsystrong) my mom, and I lined up smiling and shaking with excitement and nervousness to start this 40 mile journey. All around us were teams of other amazing people riding with a purpose. For me and Katy, the cause was close to home. We joined the @researchforcp’s first ever athletes for accessibility team which raised awareness for cerebral palsy. 💚 Katy has cerebral palsy on her left side, and I’m her mirror opposite on the right. Our CP effects us both differently, but our connection to how our bodies move is similar. We trained for a few months leading up to 40 miles. Now the day was here. We woke up at the crack of dawn to get to the start. The music was blasting, the bikes took off, and joined into the wave of people. Mile 0 of 40, and ready to take on New York City. We got to the start from the support of our amazing communities! We’re so thankful for all of the people who support our fundraising efforts, and cheered us on every step of the way. 🏅 I felt #cpstrong this weekend. 💚 I’m so thankful for what my body was able to accomplish. More to come on the #tdfiveborobiketour! #fiveborobiketour #cerebralpalsyawareness #cerebralpalsystrong #bikenyc

Words can’t even begin to describe the amazing weekend that I had in NYC. 🏅🚴🏼‍♀️ I need to start by saying that I was luckily enough to meet Katy and Jocelyn in person after knowing each other for over a year online. Who knew that one conversation with @researchforcp would end up with Katy and myself doing the TD 5 Boro bike tour together, and the three of us being able to connect and become better friends?! 💚 Being able to ride with the CPARF’s first athletes for accessibility team as a person with CP was truly an experience of a lifetime. Katy, thank you for pushing me and being my riding partner along the way! Jocelyn, thank you for teaching me more about myself as a woman with CP than I’ve ever known before. I seriously am so thankful to have you in my life and we can’t wait to come to enjoy more adventures in NYC together. One step at a time we’re doing the best we can on our own personal journeys with CP. 👟 It’s just a lot easier when we have each-other! More to come from the #tdfiveborobiketour

Want to make sushi at home?! 🍣 These sushi stacks are easier to make than you might think! ▢ 1 pound sushi grade ahi tuna, cut into cubes (we go to an amazing local grocer, @newmorningmarket1971, to get our sushi grade fish!) ▢ ¼ cup soy sauce ▢ 2 teaspoons rice wine vinegar ▢ 1 ½ teaspoons sesame oil ▢ A sprinkle of lime juice ▢ 1 avocado ▢ 2-3 mini cucumbers ▢ ½ teaspoon sesame seeds (or everything bagel seasoning - what we use!), plus more for garnish ▢ 1cups brown rice cooked & cooled! (I like to make extra rice and save it to make these the day before!) 1. Assemble your tuna & vegetable dressing. Put your cubed fish and veggies into two separate bowls, pour the dressing on top and sprinkle in your seasoning to taste. 2. Set up your assembly station! Take a 1 cup dry measuring cup and spray the top with nonstick spray. Fill the cup up with 1/2 veggies and 1/2 rice and press down with a spoon to create a stack. Tap the measuring cup on your plate to release! Repeat until all the rice and veggies are used up! (Keep spraying the top of your measuring cup so the avocado mixture doesn’t stick!) 3. Top the stack with your tuna! Garnish with more sesame seasoning and greens if you’d like! Then pour on spicy mayo! 🥑 Pretty simple right?! It’s all in the plating that makes it look fancier than it is! I also want to note this meal is perfect for people searching for yummy anti-inflammatory meals! Tuna is full of omega-3 fatty acids and considered to be anti-inflammatory. The brown rice, avocado, and cucumber are great for digestion and anti-inflammatory! 🥒 Since I’ve been training for my 40 mile bike tour 🚴🏼‍♀️ implementing more anti inflammatory foods has been a game changer for me! Tell me if you’ll try this amazing recipe out at home! ⬇️ #antiinflammatorylifestyle #sushiathome #easyrecipesathome

Growing up with cerebral palsy, I often questioned myself. Could I really push myself to do what everyone else was capable of? Or did I need to adapt, take a break, or better understand my limitations? 🚴🏼‍♀️ When I was younger, my mom literally carried on her back more times than I can remember when I got tired. Family bike trips meant getting me a tandem addition to her bike so I could keep up. (But I will say her legs were in great shape 💁🏼‍♀️) We’ve done so much together- and I’m blessed to say we’ve been on many adventures. I’m so excited for this next adventure tackling the #5borobiketour in May. We’re raising awareness for @researchforcp - and biking together side by side with @cerebralpalsystrong 💪🏼 Name a better combo than that! 💚 #cerebralpalsystrong #mildcerebralpalsy

Are you in the driver’s seat or passenger seat of your life right now?! 🚗 A few months ago, I felt like I woke up from the fog I was living in 🌫️ and I know I’m not the only one. I think you and I can both admit, these last few years have been a little weird for well… everyone 🌎 So how am I snapping back to reality and taking steps to live my life to the fullest again? 📓 Waking up & journaling 🧘🏼‍♀️ Meditating, stretching, and being with my body 📲 Setting time away from my phone (we all say it, but it really does help) 💯 Striving to reach new goals ❔ Asking more questions to myself. Do I really what this? What am I gaining out of this experience? Should I be setting a boundary? ✈️ Going on more adventures. Even if it’s to the coffee shop down the street to work. It doesn’t have to be an elaborate getaway! 🤪 Connecting to fun. Why are we always so serious?! Play, create, and be yourself! The little things can make me smile everyday. Have you ever felt like you’ve been in a fog?! 🌫️ What’s helped you get out of it?! #burnoutrecovery #brainfog #driversseat #takecontrolofyourfuture #fiveminutejournal

Actual advice from my mom 💚 So many parents reach out to me about my mild cerebral palsy to ask questions. ❔What will the future look like for my child? ❔How was life growing up with CP? ❔ Is there anything I can do for my son/daughter to help them? I’m not a parent, so I can’t speak from that point of view. But from the perspective of a child with CP, I’m thankful for a many things my parents did, here’s a few! 1. Pushed me to try new things! I tried soccer, dance, basketball, horseback riding, tennis, swim, diving, art, acting, snowboarding, the list goes on. I found what I loved because they were patient with the process. ⚽️🎾 2. They wouldn’t let me give up. I would get easily frustrated and would want to quit on myself. They always encouraged me to finish seasons of sports, the project, etc, and then make a choice to keep going or try something new. 🙌🏻 3. They made moving fun. We played so many games, we’re always outside, and didn’t make moving seem like a chore. My dad always encouraged me to stretch, warm up, and prep for long days of activity. 🚴🏼‍♀️ 4. Finally, they love me for me. 🤍 My entire community that allowed me to be myself has helped me become the woman I am today. 💚 Mild CP comes in many shapes and forms, and the people I’ve met through sharing my story have all shared their beautiful lives with me. My disability doesn’t define me. It’s just part of who I am.

Wherever you are on your journey today, know you aren’t alone. 🏔️ I’ve been rereading #themountianisyou by @briannawiest and thinking about all the reasons we hold ourselves back in life. One of the biggest ways for myself personally, is being honest with myself. ❔How am I actually feeling today? ❔Did I truly give it my all? Shouldn’t I feel content with that? ❔ What do I need for myself today before I think of others? Little things can make a big difference. Even if it’s just telling myself I did a good job. You might be able too see my disability. But what you don’t see are the mental battles in my life that I have every day. I’m not alone, and neither are you. Even if it seems like we have it all together on social media, everyone is on their own journey. Lead with compassion. Show grace. Especially to yourself. 🤍 How are you today? #motivationmonday💪 #cerebralpalsy #invisibledisability #disabilitysupport #disabilitystories

Want to know a culinary secret?! We’re in the kitchen at @fox61news with Chef Tommy Crawford from @vironrondo! 🍽️ Learn how you can make his signature herb crusted lamb with Italian salsa verde! Herb Crusted Lamb Ingredients: 4 cloves of garlic 1/4 cup rosemary Peppercorn 1/4 cup thyme Rack of lamb Add garlic, rosemary, peppercorn and thyme to a food processor, puree until smooth. Season rack of lamb with salt and pepper, sear the lamb in a hot pan on all sides. After the lamb is nicely browned, add your herb rub and put in a 400 degree oven and roast for 18 to 20 minutes. Pull lamb out of the oven and let it rest for at least 10 minutes before slicing. Cauliflower Puree: 2 shallots A quart of heavy cream 3 heads of cauliflower Kosher salt to taste Chop your shallots and saute. Chop and add your cauliflower to a pot with just enough water to steam. Cook on medium to low heat until cauliflower pieces are soft, about 12-14 minutes. Purée in a blender with cream until silky smooth. Add salt to taste. Italian Salsa Verde: 1 tablespoon capers 2-4 anchovy fillets (use 2 if you find anchovies a little too salty/strong) 2 cloves garlic ¾ cup extra-virgin olive oil 1 cup fresh parsley leaves and tender stems ¼ cup basil leaves 1 tablespoon fresh chives ¼ teaspoon sea salt 2 tablespoons fresh lemon juice Soak anchovies in cold water for 5 minutes, then pat dry and remove any large, obvious bones. Using a food processor, smash the capers, anchovies and garlic with 2 tablespoons of the olive oil until smooth. Transfer to a large bowl. Add the herbs and olive oil, adding more olive oil until you get a chunky, not oily, texture. Season with sea salt. Stir in lemon juice. This recipe is perfect to serve for Easter dinner. #eastermeals #vironrondoosteria #vironrondo #cheshirect #easterlamb #easterdinner #cheftips #cteatsout #ctrestaurants

NYC Girls Weekend 🏙️ turned into a foodie tour! 🍟 Started with brunch at @unionhallhoboken 🍝 Dinner at @ottostradahoboken - we recommend the fungi truffle pasta & buratta crostini 🦪 Oysters & seafood at @cullandpistol - our bartender Theresa recommended mystic oysters 🥙 Fresh Gyros at @miznon_nyc ☕️ Espresso martini at @starbucksreserve_newyork to end our #chelseamarket adventure - we totally recommend taking the time to stop in! 🍣 Sushi @blueribbonsushi 🥐 Ended with a butterscotch cappuccino and pain au chocolat @blackfoxcoffeeco Even though we’re close to the city, I’ll be honest, I haven’t taken advantage of all of the amazing experiences just 2 hours away from home. I’ll be back next month for the #5borobiketour 🚴🏼‍♀️and would love more recommendations! Drop your favorite NYC spots below ⬇️ #nyc2023 #ottostrada #nycgirlstrip #nycrestaurant #hobokenfoodie #nyctravel

I love to love you 🤍 @tomkaras_ #santabarbaraphotographer #santabarbarabeach #couplesphotographycalifornia

California dreaming 🏔️🥾✨📸 #eatoncanyon #disneyland2023 #palmspringsca #vacationphotos #mylifeinpictures

On this next adventure… I’m so glad it’s with you 🏔️ There will always be mountains to climb, valleys to go through, and times when your journey doesn’t seem to have a destination. 🏕️ 🥾Keep taking steps even when you don’t feel like you’re climbing toward your next goal. 🏝️ Give yourself time to relax, retreat, and heal. 🗺️ Set yourself up with a roadmap of where you’d like to go. Remember, it’s not the journey or the destination, it’s the company who’s with you through it all. 📸 @lukeadamspk @storyrealstudios #californiavibes #eatoncanyon #adventurecouple #disabilityinclusion #itsthejourneynotthedestination #californiahiking #californiacaptures #californiatravel #californiadreaming #dronephotography

A Disney Day with my #mildcerebralpalsy. 👟 When I know I’m going to be moving my body for lengthy amounts of time, I have to prep my body ahead of time for the days that are going to be strenuous and require endurance. This is the routine that use: 👟 Taking daily walks 🙋🏼‍♀️ Stretching when I start and end my day 🍎 Eating foods that keep me full and energized 💧Staying hydrated throughout the day I’ve always found that @disneyparks easily accessible and navigable for my Cerebral Palsy. There are plenty of spaces to sit and take a breaks when I need them. I’m so lucky to have friends who are ready to take on a #disneyday with me; and have a place that meets every one of my needs. 🙌🏻 #invisibledisability #disneyaccessibility #cerebralpalsyawarenessmonth #disneylandcalifornia #disneylandfoodandwinefestival

Maybe you just need to go back to the Ocean 🌊 A lot of people start to feel the winter blues and immediately think that a trip is going to help them fix how they’re feeling. While I couldn’t agree more that some warmth and sun do wonders for your soul ✨ I’m also learning to embrace my winter. I recently started #wintering by @katherinemay_ ❄️ and realized that in life there will always be winters. No matter where we go to try to get away from those “winter” feelings, we have to actually be with ourselves and prepare mentality for all of the things the season will bring. What habits will you add to help yourself through that tough time? 🏔️ For me, I’ve started more self care: - Trying to get out of bed and create a better early routine - Restarting Therapy - Looking into better self care routines & implementing them - Taking more baths - Drinking more tea - Journaling how I’m feeling We’re all in winter together right now. Make small steps to try and ease the burden of your feelings. And as always, check on your friends, even the happy ones 💕 #winteringkatherinemay #winterblues #selfcaresis #howtofeelbetter #fiveminutejournal #takeabreath

Growth is never an uphill climb. There’s valleys, cliffs, and plateaus along the way 🏔️ In 2020 I decided to really switch up my content and stop posting just the highlight reel of my life. I mean… I kind of had no choice when the pandemic hit. Trips, aesthetic adventures out, and influencer meet ups came to a hard stop 🛑 I started to ask myself, who is Alexa and what does she want to share? I took the huge leap to start posting about something none of you really knew about- my disability. When you make any sort of shift you think is positive in life, there will be people (or followers) who may not want to follow that journey with you anymore. In 2023, I’m posting for all of the people who I am so glad are with me along the way 💕 I am so grateful for the community that I’ve created over these past few years! #disabilitylife #mildcerebralpalsy #cerebralpalsyawareness #authenticstorytelling #authenticsocialmedia #sharingmystory #sharingmyjourney

You’re gonna have some ups, and you’re gonna have some downs. 📈 The work is in the valleys. We can’t always stay at peak performance. Sometimes we need to rest, reflect, do the work on ourselves we may have been putting elsewhere. Where you are right now won’t be where you’ll stay forever. 🏔️ There are other mountains to climb as life goes on, I’ve learned that time and time again. Keep allowing yourself to grow. I’m rooting for all of us in this season we’re passing through. ✨💫 #growthmindset🌱 #putyourselffirst #seasonofgrowth #seasonoffirsts #learnfromfailure

One step at a time 👟 Remember how far you’ve come through it all. Remember that you’ve made it through 100% of your hardest days so far. Keep going no matter what anyone says ✨ #cerebralpalsy #mondaymotivation💪 #mildcp #disabilityadvocate

What does cerebral palsy look like? 👟 For someone like me, who has mild hemiplegia, it’s a slight limp on my right leg. My entire right side is affected by CP, but you can notice the biggest impact on my right leg. I’m unable to wiggle my toes, have limited foot movement, and deal with muscle aches throughout my entire body. Cerebral palsy is such a spectrum. I was motivated to share my story today because @realchelseabear shared hers! Chelsea has diplegia, which affects both of her legs. If you want some amazing #cerebralpalsy content check out her page. 💕 We’re all on our own paths and journeys with who we are. I’m so excited to bring more #mildcerebralpalsy content onto my page in 2023! Thank you all for being a part of my community! ♥️ #cerebralpalsyawareness #cerebralpalsywarrior #mildhemiplegia #hemiplegia #mildcp #disabilityawareness #disabilitystories

Turning 28 was a pretty big milestone ✨ As I look back over the past 6 years, I was just becoming a professional, figuring out my path in life, and looking for more opportunities to help my growth. I always thought there would be big moments that would define my 20’s. Promotions, milestones, buying a house, getting married, the list goes on. Some of that has happened while others haven’t yet! One of the biggest lessons I’ve learned is to stop comparing my life to other people. We’re all on different journeys that are leading us to who we will become. We are constantly becoming new versions of ourselves. 💫 I would’ve never guessed my career path would take such a big shift in 2020, my life would be changed by finding my person, and I would travel through a pandemic. ✈️ Here is to another year around the sun ☀️ and many new opportunities to come!

2022 went by in a blur ✨ I want to keep remembering each special moment over the past year, but look forward to all of the upcoming new memories in 2023. 👋🏼 We just have to keep stepping into the right direction. I can’t believe we’ve already entered into the new year, and I may be a few days late with my resolutions and goals for the year ⏳ Luckily I have 362 more days to figure those out. Everyone is so quick to make a goal or resolution for the year, but it’s not a major shift or day that will make a change, it’s all the little things that lead up to it. Keep living your days with intention of reaching your goals. You can start with day 1 at any time you want. I’m manifesting good things coming my way this year, and rooting for you too 🥂 #cheersto2023

Is it hard to cover up my disability? 👟 With cerebral palsy, each case can differ drastically. I have hemiplegia which means my CP affects mainly my right leg. I used to try to cover up the way I walked, and I would be so embarrassed when people would point out that I have a limp. Now, I work on making sure I’m honest with my body and how it feels. I wanted to share this with you because it’s something that took me a long time to overcome. I don’t always feel confident with who I am, but I work hard every day to feel my best. ✨ Just be yourself, people will love you for who you are 🤍 #cerebralpalsy #mildcerebralpalsy #hemiplegia #disabilitystories #mydisabledlifeisworthy #meatpackingdistrict

Moving, changing, and adapting is something we all need to do in life. 🌊 Even when we don’t want to make the change, life is shifting, changing paths. Move with the tides of change, don’t fight your growth! I’ve had to learn to change and adapt many times in my life. I’m learning to lean into the changes that come and not push back. We’re all on our own journeys. Support others as you walk on your own. 🤍 #niagrafallscanada #horseshoefalls #2023goals #motivationalsunday

2022, it’s been a heck of a year! 💒 7 weddings 🛎️ Ringing the bell at the #nyse ✈️ Trips to Florida, NYC, Boston, California, Cape Cod and Canada 🇨🇦Seeing my entire team and Niagara Falls 📲 Growing my story and content 🤍 Countless new memories Through all the ups and the downs it’s been amazing to look back at all the things I did accomplish and do. Sometimes in the day to day, we don’t realize how much we’ve actually done over the past 12 months. before I kick off 2023, I’m going to keep spending time, reflecting on my year, and how I want to improve next year! And with that, the 2022 season comes to and end. #2022inreview

One of the things I love the most about my job is the people I’ve met along the way 🤍 This week, I got to spend time with our entire organization, but I had to give a special highlight to @diane0124 who has impacted my life in so many positive ways. She is a ray of sunshine and positivity wherever she goes ✨ and she has taught me to always take on any challenge as a growth opportunity. Everyone deserves someone like Diane in their life, and I’m so blessed to have her as a mentor and friend.

With growth, it won’t always feel like you’re going uphill, or even in the right direction at all. I used to freeze when I was overcome with fear of the next step. 👟 Now, I try to lean into what scares me so I can grow through it. It’s not always easy, there’s tears, frustrations, doubts, and the feeling that I should just give it all up. 🔥 But, this is our one shot at life, to make the most of it. So I try to keep dreaming bigger, and make the most of each and every day. We’re all going through this together. Not one person in this world can say they don’t have a daily struggle. We aren’t alone in our growth. #growthmentality #newyorkcityfeelings #dontquityourdaydream #sohohouse #sohohousenewyork #meatpackingdistrictnyc

No matter where I go with you, we’re laughing along the way. ✨ I’ve seen us grow into two amazing people & professionals over these past three years and couldn’t even imagine we’d end up where we are today. There will always be mountains 🗻 to climb, our paths to make, and obstacles along the way 🛤️. As long as I’m doing all of the adventures with you, it will all be worth it. I’m beyond thankful for you my darling.

What I had to learn through my disability 👟 Sometimes, the reality of what is holding us back can push us down even further. I try to focus on what I can do, rather than what I can’t. Living with cerebral palsy has taught me so much about myself and I’m proud of all that I’ve overcome. ✨ I’m here to share my story so you don’t feel alone. #cerebralpalsy #hemiplegia #cerebralpalsyawareness #disabilityadvocate #invisibledisability

In life, there is always going to be challenges. As a woman with a disability I know the importance of doing what’s best for me, to live my best life. No matter the circumstance, living life to the fullest should be possible for all - whatever that may look like. 🌎 #cerebralpalsy #cerebralpalsyawareness #mildcerebralpalsy #invisibledisability #womenwhohike

Finding your person 📸 For years, I settled. I didn’t know what I deserved out of a relationship. I was told I was too much. When I stopped looking for love, and concentrated on me, everything fell into place. ✨ I know people will tell this to you all the time. I know it sounds cliché. You deserve love. You deserve your person 🤍 #findyourperson #couplesphotoshoot #youdeservetheworld

Magical moments from our trip to California ✨ The perfect time to send them to us @solalunaphoto 📸 Today marks 3 years of being with my person. 🤍 Time really does fly when you’re having fun. It’s always such a blessing to stop and enjoy the moments and the memories. Thank you @tomkaras_ for setting up this surprise for me. I love to look back at every moment with you 💕

When you find yourself floating through life instead of being intentional, do these little things to wake yourself up to the present moment ✨

When was the last time you went on an adventure? ✨ I’m not saying you have to take a 10 day vacation to change up your day to day. But even a day out, a visit to a new town or restaurant. Have you been giving yourself pleasure time? Time for your hobbies, dreams, and wants? What some people think is a “break” when they really need to keep working, is actually something that will work FOR THEM. Your body is met to rest and recuperate or you risk the B word- BURNOUT. It’s a big world out there- step into it 👟 #lifecoachingforwomen #timeforavacation #takeabreaktocreate

We did it for the mouse 🐭 #disneyland Thank you @torly2 for a magical day ✨

We are all on our own path stepping through this life, but we aren’t alone. 🌎 I’m sharing my journey with cerebral palsy even on the tough days. Keep taking steps in life. #worldmentalhealthday2022 #cerebralpalsy #invisibledisability #mildcerebralpalsy

7 weddings 🤍 I’ve been so blessed to be apart of so many special days for the amazing people in my life. Together, we’ve created memories that will last a lifetime ✨you have all shown me what true love really is, and finding your person is possible. To my forever wedding date @tomkaras_ thank you for always being the best partner on the dance floor. Cheers to many more years of happiness for you all, this summer was just the beginning 🥂

Advice that you wouldn’t normally hear from me- GO OUT! ✨ It might be a late night. You might want to stay in your pajamas at home and drink wine and watch a movie 🍷🍿 (I get it we do that all the time!) But on the nights that you get invited to go out with your friends… go. Even if it’s for an hour. It will probably turn into two. Then all of a sudden you end up on your best friends deck playing Yahtzee until 2am. You don’t have to drink. You don’t have to get all dressed up. You don’t have to stay out until 1am. Of course you can if you want to- but these are some of the things I tell myself when I’m convincing myself not to go. As a 27 year old, I can tell you that your 20’s fly by. People start to grow up, get married, start their own families. Things start to change. Taking the time to enjoy where you are at while you are still young is priceless. Go out- these nights could be memories that last forever. 🤍✨

My 5-9 after my 9-5! I like to think I’m a personal chef 🍅👩🏼‍🍳 One of my favorite things to do is experiment in the kitchen. Starting with mid pies, to making a mess in my grandmas kitchen, I was always up to creating something! #5to9 #tomatogarden #tomatogallette #imnotachef #myhobbies #creatinginthekitchen

With mild cerebral palsy, sports never came easily to me. When I was 5, my mom signed me up for soccer, and that did not go well- I can’t really kick a ball! ⚽️ I was lucky enough to find a few spots in my life that I could adapt and learn how to play 🎾 Even if I’m not the best, I’m out there having a great time. You don’t have to be good at something you love. Always remember that! It helped me through learning so many new skills. Just get out there 🤍 #steptember #learninganewskill #learnsomethingnew #cerebralpalsystrong #mildcerebralpalsy #disabilitysport #disabilityinclusion #cerebralpalsywarrior

When you’re sharing your #disabilitylife, what you decide to share is in your control. Every day, I learn more about my disability, about myself, and how to share a piece of my life with you. 🤍 We’re all on different journeys with our lives’. I’m honored to be here sharing my perspective of #cerebralpalsy #steptember #cerebralpalsyawareness #cerebralpalsykids #cerebralpalsystrong #cerebralpalsyawareness💚 #invisibledisability #mildcerebralpalsy #disabilitystories

When people tell me I don’t look disabled, this is what I want them to know 🧠 #cerebralpalsy #disabilityadvocate #disabilityawareness #cerebralpalsywarrior #mildcerebralpalsy #disabilitystories

Books have always been time to escape for me. 📚 Growing up I was such a book worm, always reading the next fiction book I could get my hands on. Now, I’ve found some amazing authors and books that have helped me grow 🤍 Maybe in the past you haven’t found an author that speaks to you in self development. These books are the perfect start for you. If you aren’t growing to change your mindset you can find yourself in a major funk, with a lack of motivation, or repeating negative thoughts 🧠 Feed your mind with positivity, step away from your screen 📲 and do something different with today! 📖 Check out more reads from: @briannawiest @deepakchopra @oprah @intelligentchange #intelligentchange #summerreads2022 #briannaweist #101essaysthatwillchangethewayyouthink #deepakchopraquotes #thefiveminutejournal #whathappenedtoyou

At the end of the day if we can laugh together than it’s a win. 🤍 These last few years have been filled with so many obstacles and so much growth. Tom started a business, I joined a new company and started my content creation journey over. Through the ups and downs of it all, we’ve had each other. It’s not always going to be easy. Especially when you’re setting big goals and reaching to accomplish them every day. But it’s worth it. Keep going, keep working on your dreams, and don’t forget to laugh along the way ✨

Cheers to being who we are 🥂 Our stories help us connect to other people. Sometimes, we all want to look like our favorite influencer, but the reality is that we’re different- and that’s OKAY! Why not share who you are, how you’d like to!? I used to try so hard to fit into a mold that I wasn’t made for. So I stopped. And what happened was amazing- my following and community grew 10x! Maybe it’s a sign for you too- be yourself! ✨ #creatingreels #beyourself💯 #genuinecontent #reelstutorial #shareyourstories #bedifferentbeyou

Dating with mild cerebral palsy was always… interesting! ✨ Sometimes, my date wouldn’t even know I had CP. When I started to open up about my journey with CP, the reactions would be mixed. Many people didn’t understand what having mild cerebral palsy was like. I did my best to make sure I felt comfortable sharing that part of my life. What I realized is the RIGHT person will love all of you, for who you are. 🤍 I didn’t have to cover up my CP, and now I’m blessed to have someone who helps me manage my health. We’re all on different journeys to find our person. There’s no one size fits all. Keep looking for the right one ✨ #cerebralpalsyawareness #datingwithadisability #disabilitypridemonth #cerebralpalsyawareness💚 #datinglife

It’s the adventures with you that make my life complete 🤍

In order to change your life you have to accept where you are, so you can grow 🌱🌳 Sometimes you have to really look within and be honest with yourself. It takes time to grow. I know it can be hard to push through all the hurdles in your life. Sometimes it seems near impossible. You don’t have to be perfect, you just have to be YOU ✨ Keep taking steps every day.👟 (figuratively or literally) YOU DESERVE IT! 🤍 #nyc #disabilityadvocate #cerebralpalsy #keeptakingsteps #imcheeringforyou #cerebralpalsyawareness #fridaymotivation💪

Wedding season 🤍 Third time’s a charm with the beautiful bride and groom Theresa & Austin! #AisleGoWithKelson Spending time with friends and their families that we’ve known for over 20 years was amazing ✨ Such a fairytale evening! We’ve grown from kindergarteners, teenagers, into lifelong friends. I’m so blessed to have you all in my life as we grow into this next season. XO 🤍

We live in a world of influencers showing us how we should live our lives. ✨ What if we decided to take our own path, and be beautifully ourselves!? It's okay to be different 🤍 #tellyourstory #MentalHealthAwareness #youareamazing #disabilityadvocate

Standing on the NYSE trading floor, I looked over at our Chief Scientific Officer and said, "Did you ever think you would be in the NYSE ringing the bell?" 🛎 He told me that the first time he'd visited NYC he came by the building in a tourist group, never thinking that one day he would help a company go public. But here we are. Isn't it interesting that sometimes we reach a goal that initially our minds didn't even think was a possibility? So much so that we don't even envision it? 🤔 Over the past year and a half, I've been able to experience a startup go from a vision to a company progressing a mission. Our team has taught me to dream bigger, push past my comfort zone, and helped me grow exponentially as a professional. Just because we can't see something as a reality right now, doesn't mean that one day we won't get there. Keep your personal goals big and support dreamers around you. One day, you'll end up where you never thought you could. Participating in the NYSE opening bell ceremony this week to recognize Cybin Inc., including its employees, investors, and partners was truly an honor. #NYSE #mentalhealthawarenessmonth

We’ve always said we invested in each other at the right time 📈

Blog.

Stepping into Someone Else’s Shoes: A Journey with Mild Cerebral Palsy and Adaptive Footwear

By Alexa Orban • August 12, 2024

Imagine stepping into someone else’s shoes for a day. How would it change your perspective? This idea isn't just a metaphor for me; it’s a daily reality. Living life with mild cerebral palsy has transformed how I view disability, accessibility, and the importance of mobility aids. There's a stigma that disability is something you can see—a visible marker that someone might need accommodations. But not all disabilities are visible. My journey with mild cerebral palsy has taught me that what you see on the surface doesn’t always tell the whole story. On the outside, I might look like I don’t need any accommodations, but the truth is, accessibility tools and mobility aids help me navigate my day-to-day life effectively and comfortably. The Impact of Accessibility: Why Mobility Aids Matter Mobility aids aren’t just tools- they help maintain independence, comfort, and confidence. When you think about accessibility, it’s not just about large-scale changes, like ramps or elevators. For many people, the smaller, personal tools can have the most significant impact. Adaptive footwear has supported my ability to stay active and mobile. It’s about more than just walking; it’s about moving through life with ease and reducing the physical impacts that can come with cerebral palsy. For such a long time I didn't want to use mobility aids. I felt like I didn't 'need' them, and I didn't want to stick out for wearing an AFO or adpative shoe. What I was holding myself back from was more comfort and less recovery. If you've been thinking of adding mobility aids into your life- I say go for it. A piece of advice that I received from an older person living with CP is that he wished he took care of his body when he was younger. My motto is to make the changes now so I can stay mobile tomorrow. People with CP use 3x to 5x more energy than people without it, and yes, that includes mental energy, as we have to think more about every move we make. -CPARF Cadense Adaptive Footwear: A Game Changer One product that has truly made a difference for me is the Cadense adaptive shoe . Designed with inclusivity in mind, Cadense shoes cater to a wide range of mobility, making them an essential part of my daily routine. Because I have drop foot on one leg, these sneakers help correct my gait and stop me from tripping multiple times a day. Cadense understands that disabilities exist on a spectrum, and their footwear reflects this understanding with features like easy entry and exit, enhanced stability, and support. If you asked me 10 years ago if I would've called an adaptive shoe stylish I would've told you 'no way!,' here I am today loving the look and fit of these shoes. You can learn more about their innovative designs and commitment to accessibility by visiting Cadense . Changing the Narrative: Disability on a Spectrum When you step into someone else’s shoes— you begin to see life through their perspective. You start to understand that disability is not a one-size-fits-all model. Disabilities exist on a spectrum, and each person's experience is unique. For me, that experience includes navigating life with cerebral palsy, and finding the right tools to help me along the way. This journey is about changing the narrative—one step at a time. It’s about recognizing that everyone’s path is different, and that’s okay. I'd like to leave you today with a message that having mobility aids or adding them to your accessiblity suite is OKAY! If it changes the quality of your life for the better, it's worth it every time. A Personal Thank You to Cadense I’m incredibly grateful to Cadense for partnering with me and supporting this piece of my story. Their commitment to accessibility and inclusivity has made an impact on my daily life, and I’m excited to continue this journey, sharing my experiences and advocating for a more inclusive world.

A photo of Alexa's desk. On the left, a bouquet of blue hydrangeas sits next to a cup of iced coffee

Wrapping Up Disability Pride Month: A Year-Round Commitment

By Alexa Orban • July 31, 2024

As seen on cephable.com

Alexa, You have Cerebral Palsy?

By Thomas Karas • December 12, 2022

"I didn’t know that these sneakers would forever leave a memory as I walked onto the bus for the first day of first grade. That day was the first time I knew I was different."

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